Thursday, August 20, 2009

Thanks for praying for Kamrie!

I just wanted to take a minute and thank all of you for your thoughts and prayers for our sweet Kamrie! We know many of you fasted in her behalf and we appreciate it so much! We could feel the love and support as we spent 13 hours at Primary Children's Hospital on Tuesday. There were many tests done that we will not have answers to for quite some time. However, we did get the MRI results back. Kamrie was diagnosed with Enlarged vestibular aqueduct syndrome (EVAS). What that means is she has a hole near her ear canal and skull that cannot be fixed. It is the cause of progressive hearing loss. The Doctors don't have a time line for the hearing loss. She could stay the same, or she could lose a little hearing every year. They don't know because it is different in every case. So, this is where we continue to have faith and keep praying for Kamrie to stay positive and keep what hearing she does have! We will keep everyone posted as we learn more of her rare syndrome and her hearing loss. We love you all and truly feel blessed to have such wonderful friends and family! Thanks again for your prayers!

4 comments:

Sherratt's said...

We love you all and you are in all of our prayers. Sorry I have not called, but know that we are thinking and praying for you!! Hugs and kisses!!!

Steve and Heather Jaussi said...

We have been thinking and praying for lil Kamrie. We hope all will work out for her. We love you!

Jody said...

Camille, I had no idea! I hope everything goes ok, she will be in my prayers. We love you guys! Keep me posted.

Lyndsay said...

Oh how we love that Kamrie little girl. Know we're always here. Anytime, any day! Love you guys.